October update.

So, as October started, the kittens are growing and Hunter is loving them more and more.

Hunter with his very own baby pumpkin.

Tristian with his pumpkin

Hunter was just so excited, that I let him help me carve another pumpkin. He loved it so much.

This is Tristian being Scooby Doo, with the full acting like a dog look.

Here is Mackenzie , not liking that she had to wear her winter coat under her costume. But she got over it when she got her candy.

Hunter was Mickey Mouse, and my girl friend brought her little Princesses over. Aren't they a cute bunch.

Mickey had enough of the mittens that came with the costume...lol

I hope that everyone Had a great Halloween.

Well everyone seems to be over that bug. ( which had all the symtoms of H1N1 - but since they are not testing we don't know. ) they had a high fevers, lethargy,cough, chest colds ( kenz ), runny nose, chills, aches, earinfections. ( no runs or vomitting though. ) So I am hoping that is was that and know we have some immunity building up. I don't want anymore of anything for a long long time.

Hunter is doing well, except for his ear infection that seems to still be draining. He has a little cough still but nothing that is bothering him. ( I have kept him home know for a couple of weeks.) Kenzie and Tristian were off a week, and went back this past monday. They are both fine except for a slight runny nose.

Myself, I had a terrible chest cold. But that has passed and know I had fluid in my ear. I mean I can't hear anything in it. They said because there is no infection I just have to wait for it to clear up on its own. Which is fine because it doesn't hurt anymore... BUT I AM DEAF... which may not be such a bad thing some days.

I wish all the other heart moms and their familes well during this season of H1N1. Whether you vaccinate or not, I hope that everyone stays strong.

Talk soon.

Sick Household

Well as usual...lol I posted that the kids are fine, and they all get sick. sigh..........

On Friday Tristian had a really high fever. ( 104.8F) so after a trip to the ER.... and the diagnosis of a double ear infection and antibiotics, Tristian is feeling better.
Kenzie has picked up a bug and Hunter too ( but just a fever and a cough ).

I have picked up the head cold going around, so it has been fun. Three kids home sick all week...lol Oh well.... Tis the Season.. right???

Other than that there is nothing really new to report.

** In the heart Buddies section ** If you have been keping up to date on the kiddos and their families. Gavin's Mama is having another baby tomorrow.. PLease keep her and Baby Brody in your thoughts and prayers...
Good Luck Faith!!!

Catch UP!!........lol

Wow, What a really busy month this has been. Where do I start ???

Well the kids went back to school, everything went well with that....lol
The kittens are growing, and are very fun to have around. Although I think Hunter loves to love them a little too much. He has gotten into trouble a few times by picking them up by the neck.. You think the kittens would run away by now...NOT!

Ok, Sooooo...
When I last posted Hunter was going for an Echo. Well he had one in London , and it was great. His function was great, although there was some narrowing of the PA. But nothing more that he had before. So not really an area of concern. So we don't need to go back to London until Jan.2010.

He had an appoinment in Toronto ( where he had his surgery ). They are really impressed with him. His O2's are running 88 and 89, and sometimes in his sleep he will reach 91. So we don't need to go back until June 2010. Which we will start to look at if his fenestration has closed or if he will need a cath. SO that is great too...

But not everything is good with Hunter... Poor babe.. He had a dental visit before his fontan and he looked ok. But after his surgery I noticed that his front teeth looked different. And sure enough he has cavities and a chip in the front tooth. ( which could have happened when they re-intubated him for the fontan.. sigh.....)

So after another dental visit , this time to a child specialist.. ( and he was so nice. )
Unfortunatley It was really worse than we thought. He doesn't think that filling the cavities and a couple of root canals are really realistic for Hunter ( being a heart babe ). Not worth all the work, and considering the risk of infection is higher with what he needs done..

So what are our options??? It looks like they want to pull all four front teeth.... sigh.....
BUT!!! he doesn't want to do it without putting him out for it.. Sooooooooo, we are getting referred to Toronto. So hopefully, we will find out more soon.

Other than that, Hunter is great. Still not sleeping great .. BUT that is Hunter...lol

I think that is it for now. I will update in a while with more pics and more dental details.
But for now, please just keep him in your thoughts and prayers..

thanks
Drea

Please Keep This Boy In Your Hearts.

I will update the blog about the family later, It has been very busy around here. But everyone is fine and behaving...

But for today I have come to ask all the readers and friends and family. To keep Sammy in your thoughts and prayers. He is having an unexpected open heart surgery today. His link is in the Heart Buddies section. His mom Erika was the first " other " heart mom that helped me through all these years, all the surgeries.

She is asking for prayers, good vibes, positive energy and lots of love to be sent to her little Rock star Sammy...

Thanks

So They Are Here.

So the kids finally got their new pets....
I know we had posted the names before , but they have chaged.
This is the little boy. His name is Chance. We named him that after much imput from many friends. As you may notice from the pictures that Chance has a perfect little black heart on his side. I never noticed it before, until we got him home and he was sitting with Hunter
Soooo. Chance-- taken from " what is the chance of getting a cat with a heart on his side , considering we are a heart family...."

The little girl who is snuggled up next to Chance , her name is Magic.

She got out of her pen 3 times, LIKE MAGIC....lol

They are really cute and friendly. The kids are learning ( ongoing ) that they have to move slowly and not scream or they will scare them. They are playing and sleeping really well...

On another note, I am trying once again to potty train Hunter.. But the last two weeks he had an aweful case of the runs.. ( more than likely a rotovirus.)

So I hope that will take off this time. I am sick of diapers....

Health wise Hunter has had croup once, and an aweful rotovirus or bug... But he is still doing well..

He is playing his letters ( alphabet ) that is his favourite toy right now, that and Thomas.

The other kids are finally enjoying some warm weather, we went to the water park a few times.

Next week Hunter goes in for an echo , His first since the fontan.

I will keep you all posted.

Update... End of July..

So it has been a few days since my last post.

Hunter is doing well, he has all of his stitches out and " No sticky tape" as he would say.
We had our first visit in London the other day, and so far so good. He will have an echo in a month, But they are very please. Which in turn makes momma pleased.

Hunter's night terrors have stopped, but the pain has hung around. He is fine all day, but as soon as night comes after a few hours he is screaming in pain. Sooo...... He is not on codeine at night, which has made him really constipated... FUN!!!

on a lighter note.... He is able to return to daycare soon... ( for socialization ). I think he will be very happy to go once or twice a week and see his friends.

He is still infatuated ( sp?) with the alphabet and the vowels... he sings his song all day everyday...lol I am trying to get it on camera-- but he stops when i get it out...sigh... and his trains too.. and cars... typical boy stuff..

As for this summer, rain rain GO AWAY!!!! now that Hunter is done with the fontan, I want to take him on a few days trips to the zoo and other places, but it needs to stop raining. !!!!

And surprise!!!! we are getting two new family members...lol NOT what you think!!!
.....SO NOT WHAT YOU THINK......LOL.....
we are getting pets.. for the first time ever, I have decided that this craziness is hopefully over with Hunter for a long time, and Mackenzie and Tristian wanted a pet. I have also researched and been told that many disabled children respond well to animals and I think the responsibility might help her with some of her control issues ( I am hoping ). So we are getting two baby kittens at the end of Aug. ( as they are only 2 weeks old right now ). They are a brother and sister... ( many people have told me that two kittens get into less trouble, because they have a sibling to play with less problems with behaviour issues...lol
So I think that we have decided on names The girl is Kovu ( grey and black stripped ) and the boy Jersy ( black and white ) ( like a jersy cow )...lol
I really hope that my allergies don't act up, But i guess that I will get used to them.. Hunter is really impartial ( he says " no kitty"..) so I don't know if he will like them or not, I will see....

**updated **
I have been informed that those are not the offical names... they have come up with a few more...
If anyone has any cute names or good names for kittens leave me a message, and i will relay you message to the kiddos...lol

So I hope that everyone is enjoying their Summer.... ( and hope that all this rain leaves soon )

Talk soon...