Our Crazy Life......: We are home..

Tuesday, April 21, 2009

We are home..

Yes, that right, we left first thing this morning. Because you know after you give the CORRECT dose of dex for croup, they get better.... sigh...........

Hunter is fine, we had a little nap after we got home.. feeling better.

This is what we know
1. His heart is strong and in really good shape... ( good news )
2. This jugular stenosis will have to be fixed.. when and how is still unknown...

now we wait for the doctors to meet about his case and let us know ( could take up to 3 weeks)
Until then, they are assuring me that this stenosis will not be of any concern.. ( I hope so )

Thanks to everyone who e-mailed me and FB.. i really appreciate it..

PLease keep Hunter in your thoughts...
And please remember Gavin is having his fontan tomorrow, please keep him in your
thoughts too....

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About My Crazy Family...

I am a mother of three amazing children.

My oldest daughter had a brain tumor at four months old, and had it removed, with devistating results ( two major strokes ). She is now 13 years old and left with some major impairments and disabilities. She is so strong and determined.

Tristian is my active 7 year old. He keeps me running around and forever chasing after him. He is my Boo..

Hunter is my "miracle" of science. He was born with several heart defects, that went undetected until he was almost 12 hours old. He is diagnosed with DORV and HLHS a rare combo. Also with an VSD,ASD,COA,THLAA, single ventricle.
He has just had his fontan June 30 , 2009. ( Hunter is now 5)

For more info on Hunter, please go back to his old blog Little Lionheart ( the link is on the side of the blog ) it dates back to when I first started blogging...