Recovering.....

Well Hunter seems to be doing really well the last few days. He is going all day with no tylenol. He is running around playing with his brother, and starting to eat much better too....

Hunter has his first visit in London ( cardio ) since well before his fontan(appoinment is for next monday ). They are just checking him out, and more than likely taking out his last stitch... His o2s the last few days anyways have been good.. ( he wouldn't let me check them before..) They are hovering in the general area of 88-91, i even got a 93 while he was sleeping but only for a few seconds..lol

Now that I have said that... His nights are not going as well.. He is having really aweful night terrors. He wakes up screaming and then cries so much that he is then screaming in pain and holding his chest.. He is starting to roll around in bed too... which is another reason he is waking too... so at night he gets the full dose of tylenol every 4 hours. I remember after the Glenn procedure Hunter had night terrors that lasted a few months.. But Hunter has never really slept that good anyway.. so ontop of that the poor boy is screaming for hours during the night...

Last night he wanted to watch Cars the movie ( at like 2:40 am ) but after him screaming for almost 30 minutes I let him, and not even 5 minutes later he was out.

Now that we are home, he is getting back into his normal tv shows and enjoying them again... But he a new love for the movie cars, I mean like hundreds of times he has watched it... he is starting to say the words as they do , and he loves singing the songs during the movie...lol
I should catch that on video....

But I am going to sleep, hopefully for more than an hour.... ( before the night terrors start )
hope evenone else gets a good night sleep....

Drea